carg An update - yeah well it's already a bit over a month😢😃 it's - well good. Yes I have breaks - skins ok really but don't want an infection under the shield.
carg Undoubtedly you have bad moments and frustration, but are they getting easier to deal with?
Not bad moments but the frustration - I'm surprised what it does to me - like how my body feels and the intensity of it - I never knew. I make notes sometimes writing about it helps to not feel trapped by it.
Outings - not really. Outings are better for breaks.
carg Your parents must have noticed by now that you wear it continuously at home; have they asked about your intent?
Nope happily avoiding it😆, but she totally knows. I've been getting more reminders like if I'm going to be home alone - or I'm in my room.
